THE BURROWS HILL FOUNDATION TO FIGHT FRIEDREICH'S ATAXIA WELCOMES YOU
Make a Difference Today
The Burrows Hill Foundation to Fight Friedreich’s Ataxia was established to raise public awareness of FA, to raise money for research to find a cure for FA and assist those affected by FA. We are a 501(c)(3).
"Act as if what you do makes a difference. It does."
WHO WE ARE
Rolf Hill and Katie Burrows are the proud parents of three amazing daughters who seemed limited only by their imaginations – spirited, empathetic and intellectually curious. But when Rolf and Katie became concerned about their oldest daughter’s decrease in coordination and balance, it led to a November 2015 diagnosis they never expected for a disease they had never heard of – Friedreich’s Ataxia (FA). A rare, debilitating, life-shortening, degenerative neuro-muscular disease that affects 1 in 50,000 people, FA threatens an uncertain future. Symptoms include a loss of coordination (Ataxia) in arms and legs, energy deprivation and muscle loss, slurred speech, vision impairment and hearing loss, aggressive scoliosis, serious heart conditions and diabetes.
Less than one year later, and now with the experience and ability to see the most minimal indications of FA, Rolf and Katie grew similarly concerned about their youngest daughter. In October 2016, genetic testing confirmed that she also has FA. While each of their daughters is strong in spirit, they know that there is much work to be done. With immeasurable and unwavering support from their friends and families, Rolf, Katie and their girls are committed to helping other families better understand FA and find a cure.
With ongoing clinical trials, hope in the FA community has never been greater. Doctors and researchers no longer say “if we find a cure,” they say “when we find a cure.” Rolf, Katie and their daughters would be forever grateful for your help in finding a cure!
During the 2019 calendar year, The Burrows Hill Foundation was able to raise over $180,000. Of this money, more than 70% went to FARA to fund research, approximately 12% was provided as grants to those affected by FA, 16% was used to hold A Night to Fight FA and less than 0.3% was used for administrative expenses.
Thank you for your support
A NIGHT TO FIGHT
Friends and community members of the Burrows Hill family came together to raise over $100,000 for our first event!
Special guest, Ron Bartek, President/Director/Co-Founder of FARA, shared his passion for working with the FA community and raising awareness about the research being done to find a cure.
A NIGHT TO FIGHT - ROUND 2
Over 300 friends and family raised $150,000 to help increase FA awareness and fund research to find a cure for FA. Together We Can Cure FA!
Founder and director of rideATAXIA, Kyle Bryant, spoke about the experience of riding across America and crossing the finish line in Annapolis. Kyle is a tireless advocate for FA.
A NIGHT TO FIGHT - ROUND 3
So many community members, teachers, friends and neighbors came to show their love and support for the Burrows Hill family! This event raised over $122,000 to help fight FA.
Jen Farmer, Executive Director of FARA, offered her expert insights into the field of research going on and the hope that families have for curing this rare disease.